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8 March 2014

New SLE DVD

Organisation news

紅斑狼瘡症教育光碟
「美麗人生路」

香港風濕病基金會與樂晞會合作製作的教育資訊光碟「美麗人生路」,終於在2014年3月面世,內容包括風濕科專科劉澤星教授、譚麗珊教授及莫志超醫生解釋病症成因及治療方案;風濕科專科護師郭雪琪姑娘教導日常護理;更有四位紅斑狼瘡症患者講述她們的經歷,及鼓勵其他病患者積極面對;還有介紹各項社區資源,讓患者知道可以從哪裡尋求協助。

如想索取此光碟,歡迎致電基金會的「風知己」熱線2346 2999。

28 October 2013

New Song – Joint Health by Siu-ming

Organisation news

新歌推介「小明護關節」

小明為基金會作的新歌「小明護關節」正式推出,請大家多多支持。

特別鳴謝:
韋然作曲填詞,林子揚編曲
MV導演攝製余超然及監製李瑜

20 October 2012

JC Patient Resource&Training Centre Grand Opening

Organisation news

全港首間風濕病資源中心成立
加強公眾教育 助病人改善病情

香港風濕病基金會賽馬會病人資源及訓練中心乃全港首間風濕病專科的資源中心,並得到香港賽馬會慈善信託基金捐助裝修費用。中心開幕典禮在2012年10月20日(星期六) 正午12時 舉行,並邀請了食物及衞生局局長 高永文醫生 及 香港賽馬會慈善事務執行總監 蘇彰德律師 擔任主禮嘉賓。

香港風濕病基金會主席游寶榮先生表示「風濕病在香港並不是陌生的名字,有許多人都聽過這個疾病,但是大都認識不深,甚至存有許多誤解。事實上,大部份風濕病都是慢性疾病,雖然不會對生命構成即時的危險,但未有完全根治的方法,沒有好好治療的話更會惡化致殘障。因此,這個疾病不容忽視。」

風濕病為常見的慢性疾病,任何年齡人士均可能受影響,但因為大眾對病症的種種誤解,當出現病徵時,病人往往會忽略治療的重要性。為了讓大眾得到正確的風濕病資訊,以及讓患者得到更好的支援,香港風濕病基金會設立「香港風濕病基金會賽馬會病人資源及訓練中心」。

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18 July 2012

Book Recommendation – Know more about Rheumatism

Organisation news

New Book Recommendation –
Know more about Rheumatism

Joint problems is one of the five cause that the patients visit doctors in Hong Kong; however, rheumatism has been neglected as everyone thinks that rheumatism is geriatrics where old age is bound to suffer, and there is no cure for. Some rheumatic diseases will affect the patient’s skin, and others mistakenly thought to suffer from infectious diseases, and therefore subject to discrimination. In fact, not a year old children may suffer from rheumatism and joint diseases; inflammatory rheumatic joint disease, immune system problems, early treatment can lead to patients with disability, and it costs a big impact to individuals, families and also the society.

Therefore, the Hong Kong Arthritis & Rheumatism Foundation published this book “Know more about Rheumatism” which included an exclusive interview with the doctors, patients and their families to fully explain the types, symptoms and treatment of rheumatism, especially analysis of eight common rheumatic disease, including ankylosing spondylitis (AS), systemic lupus erythematosus (SLE), osteoarthritis (OA), gout, arthritic diseases in children, rheumatoid arthritis (RA), psoriatic arthritis (PSA), and osteoporosis. A specialty doctor explained in detail the information about the disease and patients shared their stories in each chapter.

There are included: the daughter of Ms Nancy Sit suffered from pediatric rheumatology and Ms Sit shared about the worries as a mother; Mr. Eric Wan suffered from rheumatoid arthritis and his story about not able to work as an action actor due to the illness; Rheumatoid arthritis caused Ms Maria Chung’s life a lot of inconvenience, but it inspired her to cherish family and time.

The book also introduces some of rare rheumatic diseases, such as scleroderma, vasculitis, dermatomyositis and polymyositis. The information of different adjuvant therapy is also provided. The readers can understand drugs, appropriate exercise and change in some minor details of daily life which could help to release the pain and improve the situation.

The book is available at major bookstores for purchase.

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John Doe

Member